Ambassadors

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Revée Agyepong

Registered Nurse and passionate patient advocate, Revée strives to live each day with a positive mindset and fully relies on the faith she has through Jesus. At the age of 2, Revée was diagnosed with Sickle Cell Anemia. This led to a life of many hospitalizations, medical appointments, treatments, medications, and pain. On November 09, 2017, Revée received the opportunity of a lifetime; her sister was a complete match and was able to give her the gift of life through a Stem Cell Transplant. By the Grace of God, Revée can proudly state that she is officially cured of Sickle Cell Anemia! Through this miraculous healing Revée continues to advocate, support, and bring awareness to those going through similar journeys. You can follow Revée on her Instagram account (@mysickledcells).

 

“With this huge blessing, the gift of life that God has given me, I will not let it stop here. I want to keep encouraging and motivating others to keep going in their life especially in the challenges because life is always changing and we never know what is next.”

 

“I am so excited to partner with Brave Soul Blankets because it is an amazing initiative. I cannot wait to encourage, motivate, and support the chronic illness community. Brave Soul has given me this opportunity to reach out to those who are in a vulnerable stage in their life and offer a bit of comfort. I am proud to be part of that journey.”

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Sara Cohen

Occupational Therapist student, competitive equestrian, and patient advocate, Sara strives to make a difference in her community while battling her own illnesses. In Middle School, Sara fell off a horse - this event triggered Complex Regional Pain Syndrome (CRPS). Since then, Sara has been diagnosed with Dysautonomia (Postural Orthostatic Tachycardia Syndrome [POTS]), Gastroparesis, Hypermobility Ehlers-Danlos Syndrome, Mast Cell Activation Disorder, Median Arcuate Ligament Syndrome (MALS), and Visual Snow Syndrome. Most of these illnesses are incurable, yet Sara has decided to make the most out of her situation! She rides horses competitively, teaches riding lessons, is active in the medical community through research and presentations on complex care, and the ultimate goal of practicing as a professional Occupational Therapist. You can follow Sara's journey on her Instagram account (@fromthepatientperspective).

"I received a Brave Soul Blanket the day I got home from the hospital after my first surgery, it completely turned my day around! I have had the blanket for over a year and it continues to bring joy and remind me that there is someone out there who cares about me and supports my fight. Receiving a personalized handmade blanket still makes me so happy every time I use it."

"I couldn't be happier to join the Brave Soul Blanket team as an Ambassador. Through this I will have the opportunity to help spread the same love and strength that I found when I received my own blanket. I am excited to spread hope, joy, and bravery to others who are in the chronic illness community!"

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